April 24, 2012

Well it has been a while since we have posted an update on our daughter Samantha.  She has fully recovered from her surgery and oh boy she is now a handful lol. She is an eating machine and is now nearly 20 pounds.  Sammie is clapping, waiving, blowing kisses, and has discovered her voice. Yelling is now part of her repertoire. We can’t leave her unattended for more than a minute especially on our bed.  She is sitting up, rolling, rocking, kneeling, and would pull herself up if she can grab something to do so.  The da-da that she was saying has turned to ya-ya-ya-ya-ya-ya.  It sounds like she is singing one of her dad’s Capoeira songs. The past few weeks have been really rough between RSV, a stomach virus, ear infections, pink eye, colds and swollen tonsils. Sammie has all also been snoring really loud.   Her pediatrician recommended we see an Ear, Nose, & Throat doctor.  She may need to have her adenoids removed.  We really hope not and hope that her little immune system has just not had a chance to recover from everything. Her next appointment with the Cardiologist is May 7^th. They will be doing another catheter procedure to check her pulmonary pressures and make sure that her surgery has corrected her problems.  Thanks everyone for the continued prayers and support for our baby girl.

February 22, 2012

Wow it is hard to believe that is has been over a month since Samantha has had her surgery. It is amazing to look at her and know what she has been through.  I would love to have a conversation with her and ask her how she is really feeling.  To me it looks like she is feeling much better.  All she wants to do is have us hold her hand while she trys to walk around. She also points and wants to touch everything. Her being on oxygen at night is still a challenge.  You can tell she does not like it because she immediately rips it off her face. lol  Another 4 weeks and we should be able to pick her up normally.  Thank you everyone for continued prayers.  Our family is very appreciative for everything that has been done for us. 

February 8, 2012

Today was our two week follow up appointment with the Cardiologist. Sammie had a chest X-Ray and an EKG done. The X-Ray and EKG both came back with good results. Her heart is not as enlarged and her lung is clearing up. She has also gained 1 1/2 pounds since she was hospitalized. Sammie still needs to be on oxygen but only for bedtime use. We could not have asked for better news. It looks like our little girl is healing very well. Her next follow up appointment will be in 3 months. Our prayers have been answered.

February 5, 2011 My First Birthday

Today we celebrated our daughters first birthday. It is hard to imagine that two weeks have already past since her surgery. We are so proud and happy to have her in our lives. Everyday is a blessing and everyday is another day recovering.

January 28, 2012

It has been 4 days since Sammie has been home from the hospital.  Each day Sammie  is being more like herself.  Having her not pull out the oxygen every 5 minutes has been a challenge.  She lets us know she does not like it.  We thankfully have not had to use any of the pain medication we got from the pharmacy. That was making her extremely itchy.  She is just on Ibuprofen and seems to be just fine.  We are totally amazed that our baby is doing so well and very grateful. Thank you all again for the continued prayers we have been truly blessed.  We would also like to thank everyone who attended Sammie's fundraiser. It is unbelievable the amount of kind hearted generous people we have around us and total strangers that are so giving.  Thank you all.

January 25, 2012

We did not get much sleep last night.  Sammie’s heart rate was higher than normal and we spent most of the night watching the monitor.  The nurse said not to worry but after all she has been through that was impossible. Thankfully when the technician came in to take her for her morning chest X-ray her heart rate looked good.  We had a busy morning.  Her dermatologist had to see her because she was bleeding from her Hemangiomas from where the surgeon had made his incision. We also met with the cardiologist and discharge staff.  Thank god they are letting us take our baby girl home.  She will be on oxygen and diuretics until her lung clears up.  They are also sending us home with pain medicine. Her follow up appointment will be in 2 weeks.  Once we left the hospital we both broke down and cried with tears of joy. It was almost like we were in a dream and none of this was real.  Our daughter is coming home and her little body overcame this. We are so thankful and so appreciative for the continued prayers.  All the prayers made this miracle happen. 

Are you sure we can go home?

Finally I get to play and read before I go to sleep

January 24, 2012

Sammie had a low grade fever today and because of the fever we were unable to go home.  Her Echocardiogram looked good and she is off the blood thinners.  We get to stay on the comfortable hospital floor for one more night AKA The Plaza Hotel. That is what we like to call it :) lol At least we can find some humor in all of this.